It’s been a while since I have posted. Mainly because of the Holidays and “clearing my plate.” You see, my thoughts are all over the place.
I originally wanted to use this blog to teach others about cake and cookie decorating. I have some great ideas for new products and development. I love to be creative and want to share, but I don’t feel that is my path right now.
With much dilberation and well…. internal arguments, I have decided that what is best is to focus on me, my health, and home. Even though it’s not the fun stuff I love to do, it’s the right thing to do. After all, I named this blog Starving Baker because I was neglecting self care and running after a dream.
God willing, dreams will come later. One thing at a time. First, Me.
This blog is going to turn into more of a journal and adventure into my life with a chronic nerve disorder and my process of searching, fighting, and relying on God while I navigate my new normal.
After being diagnosed 6 months ago with Trigeminal Neuralgia, I have done a lot of digging, research, group finding, reading, among taking medicine 4 times a day and CBD oil twice.
I soaked in what the Neurologist said. ‘There is no apparent cause, there is no mass, nothing touching the nerve, your brain looks good. We just have to navigate the pain.’ We decided to be patient and wait until the new year (6 months after the diagnosis) to see if there is any change and what my rascal-y nerve is up to.
So…. there’s nothing medically that can be done for my type of TN, but live with pain that fluctuates on a day to day basis. I have monitored atmospheric pressure, humidity, weather highs and lows, cold fronts….. nothing along with my pain makes sense. There is no pattern. I never know when a debilitating day will strike. It’s just dumb.
My New Years resolution was to go on the Keto diet for weight loss and inflammation purposes. I’ve gained 10 lbs since the medicine started. Even though, “its not a weight gaining medicine,” I’ve gained weight. I’m more hungry along with other side effects like brain fog, fatigue, random jerks, and the like. I’ve read some studies that have found correlation between TN pain relief and low carb diets. Why not give it a shot?
Real talk – when it come to TN there are so many different stories and what works and what doesn’t. One person may have some awesome results trying something, and one person doesn’t show any sign of difference. Tricky illness, isn’t it?
My MRI results came back today. Nothing new. Nothing changed. It is, what it is. Well…. I am not going to take it laying down with a heating pad on my face. It’s time to do my own experimenting to see what’s right for me, and what will bring results. Who knows?!? I may stumble upon the next big break through. (HA!)
I’m by no means an expert, and I wouldn’t say I’m on this ride for the thrill of it. I’d gladly step off if I could. However, I don’t know what will come if I don’t try. My current plan of attack:
- Keto diet
- Ultrasound Therapy 3 times a week
- Cold Laser Therapy 3 times a week
- Cervical Rehabilitation 3 times a week
- Chiropratic adjustments 3 times a week
- 600mg of Gabapentin every 5 hours
- CBD oil 2 times a day
- CBG oil in the morning
- Heating pad as needed
Here’s to my journey and my fight –attacking the pain that attacks me.